I got the results from those ultrasounds from the other day. The doctor said while she is confident that I do in fact have Marfan Syndrome, both scans showed my aorta to be perfectly healthy. I'm going to have to go back once a year so they can keep an eye on it, but she reassured me that if and when the aortic tissue expands too much, I'd just need to take pills to regulate it as opposed to surgery. I can deal with that.
So as far as dropping dead goes, I think I'm in the clear. but I've still got joint and tissue deterioration to worry about. She suggested Tai Chi, which is supposed to help me avoid things like my thumb or even my whole wrist...